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Michal Galazka Study Day 2024. Palliative care for children and young people: policy and practice

Cicely Saunders Institute, Denmark Hill Campus, London

06NovCicely Saunders Institute building

This year’s Michal Galazka Study Day 2024 will be taking place on Wednesday 6th November 2024 13:00-16:30. The focus will be on children and young people.

This hybrid event will be taking place at The Cicely Saunders Institute, King’s College London, and online via Microsoft Teams

This half-day event will bring together researchers, clinicians and policy experts. It will include short talks on current research and evidence, and a cross-sector panel discussion.

Agenda as follows:

13:00 – 13.30

Registration

13:30 – 13:40

Welcome

Professor Catherine Evans | Cicely Saunders Institute

Session 1

 

13:40 – 14:00

End of life care for infants, children and young people (ENHANCE): a mixed methods evaluation of current practice in the United Kingdom

Professor Lorna Fraser | Cicely Saunders Institute

14:00 – 14:20

What is quality paediatric palliative care from the perspectives of children and their families

Dr Katherine Bristowe | Cicely Saunders Institute

14:20 – 14:40

Because we care: what siblings of children with life-limiting conditions want us to know – and do

Professor Claire Cassidy | University of Strathclyde

14:40 – 15:00

The health and caregiving experiences of fathers of children with a life-limiting condition

Dr Victoria Fisher | Leeds Beckett University

15:00 – 15:20

Refreshment break

Session 2

Panel discussion

Chair: Professor Lorna Fraser | Cicely Saunders Institute

15:20 – 16:25

James Cooper | Together for Short Lives

Toby Porter | Hospice UK

Dr Emily Harrop | Association for Paediatric Palliative Medicine research lead

Sophie Andrews | Noah's Ark Children's Hospice

Dr Liz Bendle | Evelina Children's Hospital

Zillah Bingley | Rainbow Trust Children’s Charity

16:25 – 16:30

Close

Professor Katherine Sleeman | Cicely Saunders Institute


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