Focus Group on Distributed Life Data Economy

ARK Moderators: Svitlana Surodina, Chris Albertyn and Richard Siow 

The Ageing Research at King's (ARK) team conducts a series of round tables, focus groups and interviews with the industry leaders that aim to define the state of the art in ageing-relevant data collection and sharing. We will map technological, commercial, organisational and behavioural contexts of personal data sharing, understand how currently data contributions are valued, incentivised, in particular via interface design and visualisations, against what metrics their performance is evaluated, and what are the critical gaps organisations aim to address. The result of the research will feed into creation of an industry-level guiding framework for Life Data valuation for effective data collection and sharing between organisations.

Speaker:  Davide Zaccagnini, MD, Founder and CEO, Agorà Labs

Davide is a medical doctor and former MIT researcher currently leading Agorà Labs where data sharing is decoupled from compliance risks thanks to privacy-guaranteed, distributed computations, from classic statistics to federated learning. Davide served for 3 years in the World Wide Web Consortium, working on biomedical data standards and has published extensively in cardiovascular medicine and medical informatics topics.

Speaker:  Chris Albertyn, Project Manager, Ageing Research at King's (ARK)

Chris is a clinical researcher at the Institute of Psychiatry, Psychology & Neuroscience. He has 7+ years experience managing clinical trials and cohort studies in dementia and other age-related diseases. Within his project management role for ARK, Chris has focused on facilitating partnerships between academia, health & social care, policymakers, and industry, with a particular focus on applied AI and data science initiatives for healthy ageing.

Discussion Themes: Life and Health Data, Human Computer Interation, Human-Centred AI, Federated Learning, Distributed Science, Data sharing, Data value, Visualisation

Benefits of taking part

• Networking: other participants, similarly to yourself, are leading executives and specialists at health and longevity organisations;
• Benchmarking: understand other organisations progress and capabilities in Life data collection and processing;
• Innovation: opportunity to develop practical collaborations, co-authorship of research;
• Thought leadership: priority access to the resulting framework and other research outputs,
• Publicity: if you choose to participate non anonymously , your name will be included in the list of contributing experts in the dissemination and outreach materials.

Participants in this research have a direct decision making role within a company that collects and/or processes personal health-related data or have prior experience in decision making in the areas of user data collection and engagement.

Participation in this workshop is by invitation-only. If you are interested in taking part, please get in touch with Svitlana Surodina, ARK Entrepreneur in Residence.

Project Supervisor:  Rita Borgo, Human Centred Computing